My Journey My Challenge – Multiple Sclerosis Journal VI

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By Jewel Tyler

(continued from Journal V)

I was awakened around 4:30 am, I was being informed that the surgery for the pacemaker was being delayed.  After fully waking up I thought to myself “later is fine with me.”  I had been informed what the procedure would be for my surgery and that I would not be put to sleep.  Not being put to sleep had me very concerned.  I am not a fan of pain, as I would guess no one is, I was told I would be administered a local anesthesia for the procedure.  Everything was hitting me too fast, first the Multiple Sclerosis diagnosis, having to fire Dr. Gupta and then my heart trying to stop, it was just too much.  I became a bit overwhelmed and I was alone in my room and the tears started to fall.  I had to pull myself together, and the only way I know how to do that is to talk to God.  I began to pray and ask God to bless me with the spirit of peace beyond understanding and for his unspeakable joy at a time like this.  I also, asked that he guide the doctor’s hands since he was going to be dealing with my heart of all organs in my body.  I begin to feel myself relax.  I got out of bed to wash my face and brush my teeth, and forgot my legs were not cooperating as they always had in the past.  I quickly remembered I needed the walker by my bedside to assist me to the sink which was only a few steps away.

After washing my face and brushing my teeth, I laughed at myself in the mirror; my hair was a mess and everywhere.  Isn’t strange how we women no matter how we are feeling become concerned about our appearance.  I thought for goodness sake you are getting ready to go into surgery; your hair really doesn’t matter.  By the time I returned to my bed and slid under the covers, a gentleman arrived in my room.  Wished me a good morning and said I am here to take you to OR.  I asked him to give me a minute; I called my son and left him a voicemail message to let him know I was on my way to surgery.

Once I arrived in the operating room and I was transferred to the bed for surgery, my whole body began to tremble, I was freezing, it was so cold and I believe I was also trembling because of fear.  I quickly reminded myself, “God has not given us a spirit of fear, but of love, power and a sound mind.”  I said my amen and the nurses arrived that were there to prep me for surgery.  The anesthesiologist arrived and explained what he was going to be administering to me via my IV.  Finally Dr. Nguyen, came in with his soft tone and comforting bedside manner to assure me everything was going to be fine and he would be done in no time.  My face was covered with a blue paper cloth type sheet thingy and I was told to turn my head to the right.  I was asked what type of music I liked I shared classical preferably Bach, and the nurse explained I was in luck they had some Bach.  She turned on the music and within 10 minutes, it was lights out for me.

I awoke in recovery with a nurse talking to me.  I was so dazed and drugged; I looked around the recovery room and saw other patients coming out of their comatose state as well. The nurse was busy checking my urine drainage bag.  Then blood pressure, why does that thing squeeze your arm so tightly, and I guess what irritates me is they always seem to use the arm that the IV is in as well which causes even more pain.  I was obviously in and out our consciousness, because I was still so very drugged.  In spite of how drugged you are the nurses are constantly communicating and working on you.  After everything checked out for me, I was once again on the move to my room.  I remained in the same bed and finally I conceited to the drugs and off to sleepy land I went.

I was awakened by someone kissing me all over my face, when I finally was able to focus my eyesight tears filled my eyes, to my surprise it was my best friend from Los Angeles, Ca.  I could not believe my eyes; she was here in the hospital room with me.  I was like “What are you doing here?”  She smiled and kissed me again, “Girl, I purchased my plane ticket right after I spoke with you last night, I was trying to get here last night but there weren’t any flights.  There was no way I was not going to get where and my girl was having heart surgery, love you too much girl.”  I was just so overwhelmed, this is my friend that is unemployed and ill herself but she made her way to Texas to be with me during this time of my illness.  This was so very special to me because I was dealing with so much all at one time.  God knew I needed her.

(to be continued).

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MS Journal V

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By Jewel Tyler

(continued . . )

I have heard it said when you are in the hospital you should rest. Resting in the hospital is unheard of. Even through the night one cannot rest because of the nurses coming in all night taking your blood pressure and temperature. I know they are doing their job, but after the day I had with Dr. Gupta and then being interviewed by administrative staff about the incident which had occurred earlier in the day with her visit.

A month earlier, I had a conversation with my brother; we were discussing spirituality as usual. I am the type of person when I pray it is not necessarily just for me. I pray for the world, people I don’t necessarily know. I know the Lord has me so I intercede for others. I have been like that for many years. So, because of all of the devastations and news that bombards us on a daily I was feeling overwhelmed with how evil people in the world are now toward one another. I stated to my brother I would much prefer to be with the Lord. We ended our conversation and time passed to the day in the hospital.

Finally, I had dinner and it was time to rest, I had curled up under my covers in the bed and was sleeping so wonderfully. There was no pain, no numbness and nothing was bothering me at all, just blissful sleep. My cell phone kept ringing, I tried to ignore it and continue to sleep, but someone was determined to reach me. I thought to myself, I should have cut the ringer off.

I answered the phone and it was my brother, he was crying, and it was a deep cry. He asked me to please wake up so I could hear what he had to say. Once awakened he was going on and on about me repenting. I kept asking him to repent about what. He said “Repent about what you said about being with the Lord, he is coming for you tonight.” He continued “Sis please don’t go, it’s not time yet.” I was awake now, and not too pleased about being awakened especially after resting so good. “What are you talking about and why are you crying?” He continued to repeat, “Sis please repent, you don’t want to go now, please.” I told him I was okay and I just wanted to go back to sleep.

I hung up the phone and slumped back down into the bed and under my covers. Off to sleep I went. Yes, back into my blissful sleep state. Next, a nurse woke me up; she was adjusting the wires and nodes on my chest and legs they had placed earlier with a heart monitor. The nurse asked me to please sit up in my bed, and I asked her why? She explained she thought something was wrong with my heart monitor.

After she left, I went back to sleep and covered my head. Blissful sleep again. Once again, I was awakened but this time it was the nurse with the head nurse. They were asking me to sit up in the bed. I was so groggy, and agitated by them disturbing me again and again. Then the room filled with more individuals, all around my bed. I asked what was going on. The head nurse explained as he was taking my vitals that they were concerned about my heart rate. Based on the monitors and the current reading, my heart rate had dropped to 19. I had no idea what that even meant.

First, it was nitroglycerin, and then they checked my vitals again. More nitroglycerins and then checking my vitals. They continued to explain my heart rate was not getting any better. My head was pounding the pain was getting greater and greater. The nurse explained it was because of the nitroglycerin. My chest was beginning to hurt and the pain was radiating through my back and down my arm. My head felt like it was about to explode.

Through the pain, I heard some code being called with my room number. It was about me, I was in a private room. Next, a woman rolled in the room with a big red cart. I recognized it from movies; it was what they call a Crash Cart. The woman approached the bed, my head rolled back from the pain, it was excruciating and I was having difficulty breathing. I wanted it all over, and just as that thought crossed my mind the woman with the cart was snatching off the patches and plugs from my chest and legs. She placed some large patches on my chest connected to her machine and a shock went through my body. Once again, another shock. My head was beyond feeling as if it was going to explode.

I closed my eyes from the pain, the nurses were calling my name, I just wanted to escape my body. When I finally opened my eyes again, I was being rolled down a hall. I was surrounded by nurses and they were trying to comfort me and tell me everything was going to be okay. I dozed out, the bed shook; I was in an elevator, I dozed out. I was being picked up laid on a cold table; in a machine, comforting words. Head pounding, the machine was making a banging noise. Being picked up put back on my bed; were moving again. I have to urinate and really bad. Pain in my head, pain in my chest, my arm, my bladder. How can I escape this all?

They were rolling me to a different room; I faintly asked where they were taking me. The nurse replied you are in ICU sweetheart. Once in my room and they had hooked up everything, I explained to them I really had to go to the bathroom. They put a bedpan under me, I felt like I let go of a river and it was a river. When the nurse returned, I was wet from head to toe. I had never been so embarrassed in my life.

Nurses returned to my room, I explained to them what had happened. They put me in a chair and then changed my bed and bathed me and redressed me. However, I felt like I had to urinate again. How could that be I thought. The nurse was returning with another bedpan. I explained to her I do not think that would be big enough. Another nurse returned and said she was going to put in a catheter connected to a bag.

Once it was in place the nurse explained to me how to relieve myself. Just too simply relax. I do not think 30 minutes had passed and the nurse returned to check on me and she ran out of the room. The bag was full. She returned to replace it. I asked her where was all of the fluid coming from? She explained when a person’s blood pressure elevates and starts to come down there is a release of fluid. I was so weak and wanted answers but I was still in a lot of pain.

My cell phone started ringing; I did not realize the nurses had transferred all of my belongings to my new room. It was my son; I explained to him everything which had happened. Before I could finish my conversation with him a woman entered my room along with a man. The man was a cardiologist, Dr. Nguyen, and the woman was from a company called Medatronics. They were discussing with me I needed a pacemaker. I had no idea what a pacemaker was and what was required to have one implanted. My phone rang it was my stepdaughter; my son had called her to tell her what was going on. She is a nurse and wanted full details. I was so weak, I gave my cell phone to the doctor and he discussed in details with my daughter my condition and the next steps they wanted to take to help me.

I told the doctor I needed time to think about it; in reality I wanted time to research everything about my condition and having a pacemaker implanted. My son came to the hospital with my laptop, and my work phone. I contacted my job and explained I needed surgery and I had no idea when I would return to work. Next, my son and I researched my condition also what is required to have the surgery. Before I could finish my research the doctor returned, he said we needed to schedule my surgery as soon as possible. I could not take the chance of my heart stopping the next time completely.

A dear friend of mine that is like my sister Lisa called me from Los Angeles, she stated I was heavy on her spirit. I explained everything to her; she prayed with me and told me she would call me later. After discussing everything with all of my children, I consented to the surgery. It was scheduled for 4:00 am the next morning.

The epiphany from all of this was when the doctor explained to me it was a good thing I was in the hospital because if I had been at home, I would not be here to write this blog.

(to be continued)

MS Journal IV

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By Jewel Tyler

(continued . . )

Dr. Harney later awakened me from my drugged state of sleep. I utilized the button next to my right arm to raise my bed as well as myself into a sitting position; since my left arm and hand were useless at this point. He pulled his chair closer to the bed, he explained he wanted to draw a graph and discuss my condition.

He began to explain to me he had spent the last hour or so with a doctor analyzing my MRI’s and CAT scans from the past against my most recent tests. One of the first things caught my attention was he stated I had eight lesions on my brain. It was just a year ago; Dr. Gupta said I had five. I continued listening. He shared I had Relapsing Remitting Multiple Sclerosis.

First, I was really having a difficult time accepting what he was saying. I know my body was in a bad state. I knew I could not make it to the bathroom without utilizing a wheelchair. I knew I could not with my brain tell my left leg and foot to walk normally. I could not remember something I had just read and so much more. However, trying to accept this diagnosis and the way he was explaining it to me was just overwhelming. I held it together, and being the person that I am, I just wanted him to be done and leave so I could research what MS was on my own and how I could have possibly contracted this disease.

While lost in my own thoughts, I missed a great amount of what he was saying. I really wanted to hear everything he was saying. Therefore, I held back my tears, because I felt like I wanted to cry a river. I asked him if he did not mind starting all over again.

This time I paid attention to the graph he had drawn and every word he spoke and took notes as well. He said, I had relapsing remitting Multiple Sclerosis. What that meant was I would have an exacerbation and then after being treated with steroids, I would feel better. During those times of feeling better the disease would be in remission. He continued explaining some of the lesions on my brain were old, so I have had the disease for many years but it had gone undiagnosed. Also, because of my age and receiving the diagnosis at this point, we would never get ahead of the disease with treatments. Our best bet would be to try to maintain the disease and symptoms and hope it would not progress too rapidly. The graph was showing how the disease progresses over a person’s lifetime. Starting around the age of 20 and up to their 50’s. Well, when we had this discussion, I was 52 years old.

He was so patient and very informative. He said he recommended that I start a drug called Copaxone. I would have to sign up with a company called Shared Solutions to start receiving my medication. He continued to explain I would be visited by several different therapists and I would be in the hospital for a while and he was also recommending that I be moved from the current hospital to a Rehabilitation Hospital for physical therapy and occupational therapy. Then he was gone.

I sat in the room, I would guess in shock, denial, frustrated, angry, every emotion one could possibly think of upon receiving this sort of diagnosis. Then the release, the tears began to flow. I asked the Lord “Why ME God? “Why?” I called my son; I wanted my laptop to begin doing research on the disease as well as the medication I would have to take. Number One – GIVING MYSELF A SHOT everyday was out of the question. I hate needles with a passion!

As I waited for my son, the rest of my day was filled with visits from various types of therapist. There was a therapist assigned to assist me with learning how to use the walker. How to get out of bed and making it to the bathroom on my own instead of using the wheelchair. Next, there was a therapist to assist with my cognitive ability, she would read a paragraph and then ask me pointed questions regarding what she had read. One after the other paid me a visit.

Finally, my son arrived with my laptop. I explained to him everything the doctor had said earlier, based on the graph and information he had left me with along with my notes. We sat together both trying to absorb his diagnosis. Next, it was time to inform my family what my diagnosis was and the fact I would be in the hospital for a while. I did not have an exact time frame at this point. I also contacted my employer via email on my work cell phone.

The next day was a nightmare to say the least. It started in the early morning with a visit from my original neurologist, Dr. Gupta. The first thing she said to me was she did not agree with Dr. Harney’s diagnosis. She stated I did not have MS. However, she arrived with the documentation for me to sign to start the process of having the Copaxone prescription filled. I was drugged from the pain I had been experiencing and I could not believe what she was saying. I was in a state of confusion. This man had sat and talked with me extensively the day before and he even shared how he had spent time with an X-Ray specialist and they had both agreed based on my MRI results over time that I had MS. I asked her nicely why did he say that and why did the X-Ray doctor agree with him if I did not have MS. Let me digress here, I did not want this diagnosis to be true trust me. However, at this point I was really questioning this doctor’s diagnosis after going through so much with her over the past year. She was rude, and abrasive. Once would think a patient receive this sort of diagnosis and being in my current condition, I really wanted facts and information. Not to be talked down to or dealing with a doctor being rude.

Dr. Gupta raised her voice at me and said “Look I am doing you a favor by even being here this morning, I have other patients I need to attend too; I am supposed to be at my office, but I took time out of my schedule to come here and see you.” Furthermore, she continued, “I am the doctor here; do you have a degree in medicine?” I looked at her with tears streaming down my face and asked her “Why are you raising your voice?” I continued “Why are you talking to me like that, what kind of bedside manner is this coming from a doctor toward a patient going through what I am dealing with right now?” She continued with her voice raised, “I don’t have to answer to you, now here are the papers that Dr. Harney wanted you to have you can do what you want with them.” She left, I sat there thinking “Oh my God what kind of doctor is this person.”

One of my nurses entered the room after her departure, she found me sitting up in bed crying. She asked what was going on, I explained in full detail to her what I had just experienced with Dr. Gupta. She left but later returned with the head nurse and ask that I explain everything to her. The head nurse shared with me, they had received several complaints regarding Dr. Gupta in the past. That is when I decided I no longer wanted her to be my doctor. I requested the nurses inform her I did not want any further visits from her. It was just to upsetting and I had spent over a year dealing with this doctor who did not seem to know what she was doing. Yes, I fired her as my doctor while in the hospital.

Later that afternoon, my son from California called me to see what was going on. He stated Dr. Gupta had called him directly and explained to him I was depressed and also dealing with anxiety with my diagnosis of MS and maybe he should speak with me. I could not believe my ears. This is the woman earlier that morning who stated I did not have MS, however she called my son expressing I was having a difficult time accepting my diagnosis. Also, I forgot to mention she prescribed an anti-depressant for me. When the nurse arrived with the medication as I always do, I inquired as to what the medication she wanted me to take and what was it used for. That is when we had the discussion about my conversation with Dr. Gupta. I refused the anti-depressant. I did not need it!

(to be continued)

MS Journal III

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By Jewel Tyler

I used to believe I was an individual who was in control of my destiny. This was before I was saved and then I realized I was not in control of my life or my destiny. I also came to realize even though we make plans on the direction in which we would like for our life to head; it has a way of going a different path.

One can eat healthy, exercise, meditate, rest properly and live a stress free life; and out of nowhere knocked down with an illness. I have studied naturopathy (natural alternative healing methodologies); I am currently pursuing a Doctor of Naturopathy degree. I have been a vegetarian, a vegan, a yoga student, a power walker, an individual that swam laps on a daily basis. I have lived a predominately-happy life. I have always had low blood pressure, diabetes free. My annual physicals my doctor would state my heart rate was that of an athlete. I had not suffered with no major illnesses in my life.

However, I have not had total perfect health; I do not think anyone can honestly say they have. I have had difficult pregnancies, which required total bed rest after my fourth month. I suffered with various female issues (ovarian cysts and fibroid tumors) as well as endometriosis that resulted in a total hysterectomy in 1992. After that, no health issues with the exception of migraine headaches, which I contributed to my hormone replacement therapy.

However, for many years, I continued to have episodes (that is what I used to call them) which caused numbness and tingling in my extremities. Also, extreme fatigue and in some cases strange pain in my legs. In the early 90’s my internal medicine doctor diagnosed me with Chronic Fatigue syndrome. I remember one spring as a teenager; I could not walk for a week. My mother contributed it to the fact I had gone swimming too soon and maybe had cold in my muscles. The interesting fact is over the years these crazy episodes continued to occur every few years with no explanation. I would end up in the hospital with no real diagnosis and then sent home again.

When I finally reached the age where my children are adults starting their own family and I can begin to travel the world as I had always dreamed my body took a turn. A turn that has practically rendered me unable to barely leave my home for a long period of time, let alone travel abroad.

Labor Day weekend of 2011, my son rushed me to the hospital I was unable to walk and had lost use of my left arm. I was experiencing issues with my short-term memory as well once again. Once I arrived in the emergency room, I was immediately rushed to have an MRI. When I was returned to the emergency room, I was informed I would be admitted to the hospital and was administered once again Solu Medrol intravenously. The physician on duty informed me he had spoken with my neurologist Dr. Gupta, I had mentioned in my previous blog she had diagnosed me with mini strokes and being prone to seizures.

I felt helpless, lost, confused and depression started attacking me. I could not figure out what could be going on with my body. Based on my test results from the past year and especially my results from the spinal tap, I did not have MS. The next day in my private room, I awakened to the fact I could not walk let alone utilize my entire left arm. I attempted to get out of bed to go to the rest room and realized I barely had the ability to sit up on my own. It was as if I had awakened to a nightmare. I rang for a nurse and she assisted me to the bathroom via a wheelchair. I felt humiliated.

Once, I returned to my bed, there was a male doctor waiting for me (Dr. J. Harney). He was a neurologist and the doctor on call for the hospital from his office; he explained to me Dr. Gupta was his partner. He performed a neurological examination and explained to me he wanted to examine my past and current MRI’s; he would be back to discuss his findings. The trip to the bathroom left me in excruciating pain. I was given morphine via my IV and off to sleep I went.

(to be continued)

MS Journal II

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By Jewel Tyler

As time continued to pass and my health was not improving, I decided to seek out a different neurologist. In the end, this was a complete waste of time. I ended up having to go through the same tests, EEG and the other tests I mentioned in my previous blog entry. Same results, I was having health issues because of migraines was the final diagnosis. Therefore, I decided to accept the diagnosis I had received from both neurologists. However, continued to not feel 100% like me!

The original neurologist assistant contacted me because I had not kept my follow-up appointment. I explained to her how I had been feeling and since the doctor stated my health issues were, only due to migraines or possible mini strokes I had opted to just deal with my symptoms. Not even an hour later the doctor called me herself, stating she really wanted me to have the spinal tap done before she provided a final diagnosis. This time, I agreed and scheduled the procedure; it was performed in a hospital.

I had the procedure done and scheduled the allocated time off from work suggested by the doctor. The first day I returned to work, I was sitting at my desk and I began to experience a headache unlike any headache I have ever had in my life. I recall one of the issues one could experience was a very bad headache that would go away if I were to lie down. That is exactly what I did, I lay on the floor next to my desk and the pain went away. One of my co-workers saw me lying on the floor and I explained to her what I was experiencing. Before I knew it co-workers asking 100 questions at once surrounded me. “Do you want us to call an ambulance, do you feel like you are going to pass out if you sit up, can you sit up, what can I do to help?” I once again attempted to sit up on the floor and the excruciating pain returned. I explained to my co-workers I did not want them to call an ambulance. And one of my co-workers Ms. B., that I considered a friend came to my desk, when she asked what I wanted to do, I asked if she would drive me to the hospital in my car. She agreed and retrieved my car. It was a scene I must say, approximately five of my female co-workers assisted me downstairs to my car and off to the hospital we went.

Once we arrived I was informed I needed to have a blood clot block placed in my spine because the hole in my spine where they had taken the fluid for the spinal tap was leaking. I was so nervous about them going back into my spine and also having the procedure performed in the emergency room. My reluctance of allowing the doctors to penetrate my spine in the emergency room was due to my sister’s experience. She had a spinal tap done in an emergency room and they severed her L5 and L4 nerves in her spine, which rendered her partially paralyzed. However, I was in so much pain, I conceited and allowed them to perform the procedure but only under heavy drugs. I was knocked out during the whole procedure only to awake to find blood everywhere. My friend who was with me stated during the procedure when they were first taking my blood to put into my spine I was fighting them even though I was under the influence of drugs.

I returned home and laid flat on my back for almost a week. I only would rise to utilize the rest room and take care of my personal needs. I finally returned to work and was contacted by the neurologist, she stated based on my results of the spinal tap there was no way I could have MS because I did not have a high count of certain proteins.

So there you have it, back to square one.

Labor day weekend, I was feeling pretty good, and decided to rearrange my living room and have lunch with my son. We had been joking around most of the day and it was the first time he introduced the LMFAO video and their new dance “The Shuffle”. I had a ball learning how to do the dance and made my son roll in laughter all at the same time. As the afternoon approached, I once again started to feel extremely fatigued. I was so exhausted; I could not even prepare our lunch so we decided to order out. Once the food arrived all I could do was lay on my sofa, this is where I also ate my lunch. I finally sat up to go to the restroom and that is when I realized I could not move my left leg at all. I called for my son to assist me with getting to the restroom down the hall. When I emerged from the rest room, my son was standing there with my car keys in hand. He said, “Mom I think we need to go to the emergency room.” I agreed.

(to be continued)

MS Journal I

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By Jewel Tyler

Two years ago, I was faced with receiving the most difficult news in my life. As I lay in the hospital trying to remember my telephone number, address and things that come to mind naturally. A female doctor walked into the emergency area where I lay with IV’s connected to my hand that had no feeling. My spine felt like it was on fire. My left leg was useless. She asked, “Has anyone ever checked you for Multiple Sclerosis?”

My first response was “what is Multiple Sclerosis?” My second response was “of course not.” I was then whisked away to the X-ray area and before I knew it I was in a MRI machine. When I returned to my area in the emergency room, I was given Morphine for the pain and told we had to wait for my test results.

As the morphine burned it’s way through my body, my mind attempted to race with the idea of what could possibly be going on with my body. Of course, my first natural response was to pray about it all. I had a friend with me in emergency along with her son and the pain had not subsided even after the dose of morphine. I tried to relax as best I could, but I continued to not accept the doctor’s prognosis.

The doctor later returned to inform me that they had found lesions on my brain – five to be exact. She said I needed to have a spinal tap done and I absolutely refused to have that procedure done in the emergency room. I was told I was going to be admitted and also administered Solu Medrol via my IV. I was later taken to my room, settled in and the nurse started the medication.

I remained in the hospital for another two days and upon my discharge the doctor who provided the Multiple Sclerosis (MS) prognosis asked that I follow up with her, after being discharged. She also stated that I could have possibly had five mini strokes that went untreated but there were tests required to confirm what was really going on with my body.

I returned home, rested for a couple of days and returned to work and continued life as usual. I never called the doctor nor followed up with anyone.

Not even three months later, I began to notice I was experiencing extreme fatigue. I live in Dallas, TX and the spring was approaching. Anyone from Dallas knows there are only two seasons (Winter and Summer). The heat for some reason caused me to experience extreme fatigue. Fatigue unlike anything I have ever endured in my life. I parked three downtown city blocks from my office where I worked. And I recalled talking to my mother as I was walking to my car in the sun and the heat. It took me 20 minutes to walk three blocks I had to keep stopping to simply rest. By the time, I finally reached my car I was exhausted to no degree. This repeated every afternoon. I finally decided to spend the extra cash and park in the covered parking garage. This helped some but by the time I sat in my car it was burning up and I felt like I would pass out.

I finally conceited and decided to contact the neurologist I had met at the hospital and schedule an appointment. It was six months after my hospitalization when I initially met her. When I arrived for my appointment, we discussed the extreme fatigue I was experiencing and the numbness in my fingers, hands, left leg and foot. She sort of brushed over those symptoms and continued to focus on the “mini stroke” diagnosis. We discussed as a young teenager I experienced complex partial seizures and the majority of my adult life I had experienced migraines inclusive of “cluster migraines.” She informed me that one can get brain lesions from migraines as well. So, our next steps were extensive tests primarily focused on the migraines as well as the mini strokes. I was fine with that!

I had EEG’s blinking strobe light testing, I had to sit in front of a computer screen with a black and white swirling program. The diagnosis came back that I could be prone to seizures. No new news (smile). I had already explained to the doctor I had seizures as young girl.

I spent so much money for follow-up visits and testing but I was not feeling any better. I had not had a seizure in years! I continued my visits with the doctor and continued to deteriorate health wise as well. This went on for a year. Finally, I believe I had enough of the run around I felt I was getting with this female doctor. So, I stopped going to see her. However, I continued to be very nervous about my health that seemed to not be improving at all!

I did seem to have some relief when the fall started to approach, but to my surprise, once again, the numbness became overwhelming again and the fatigue! I had no idea where to turn or what to do. I took some time off from work and rested at home for a couple of days.

Not realizing, I was about to experience the most frightful health experience ever.

(to be continued).