My Journey My Challenge – Multiple Sclerosis Journal X

9701ca4b58f47c62a2f001513731d72b

by Jewel Tyler

Once back at work, because of the volume of work which had to be done, I started working from 6:00 am until sometimes 11:00 pm everyday.  The long hours at work started to take their toll on me.  I was overwhelmed with fatigue; my left leg was causing me so much pain and numbness.  The most challenging was trying to remember various configuration settings I had to perform on my client’s computer systems.  I recall one client that I had to totally reconfigure five of their applications.  I signed in on their server and my mind simply went blank.  I was so frustrated.  I had to come up with a system and organize myself to be able to perform my duties.

I collected various colored notepads and jotted down configuration settings for all of the different applications I was responsible for on a daily basis.  My idea paid off, especially for the client’s which required training on how to configure their various applications on their servers.  Success!

One day I was on the highway driving home from shopping, as I was driving my vision started to become blurred.  I wiped my eyes, and blinked repeatedly but to no avail.  I simply could not see clearly everything was doubled the words on the signs for exiting, the cars swooshing past me doing 75 miles per hour or more (that is the speed limit in Dallas on their highways).  I was so nervous, I recalled on one of the many videos I had watched on MS from the MS Society that if you close one of your eyes that is not being affected with double vision one could see.  It worked, I was able to get off the highway and pull over.  I called my son and asked if he could catch a taxi to my location.

The next day I awoke from my sleep around 3:00 am I had wet the bed, and when I stood up I had a very bad case of Vertigo and my vision as once again distorted with seeing double.  I immediately emailed my boss to tell her I would not be able to make it to work and explained what I was experiencing.  I called the Neurologist and she asked me to come into her office.  I was feeling a repeat of what put me in the hospital for a month.

Once at the doctor’s office, she examined me and explained she had all of my test results and her final diagnosis was I did not have Multiple Sclerosis.  I asked what could be going on with me?  She replied “I don’t know what is going on with you, but I am sure it is not MS, your lesions on your brain even though you have over 9 they are not significant enough to be MS.  I’m sorry; I can no longer treat you.  I can however recommend a pain specialist.”  Tears began to stream down my face, I was not just dealing with pain, but Vertigo, double vision, incontinence, and numbness and tingling.  My left let was practically useless; and I was looking at this woman whom had just said she basically had no idea what was going on with me.  I stood and made my way out of her office.  A complete waste of time, money, and so much more.  I was devastated; I had no idea what to do next.  All I knew I was sick, and it was getting worst.

I called my family practitioner to schedule an appointment, maybe I had diabetes or something, I had no idea what was going to happen next.

 

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My Journey My Challenge – Multiple Sclerosis Journal IX

9701ca4b58f47c62a2f001513731d72b

by Jewel Tyler

Before leaving the Rehab Hospital, the case worker that was assigned to me located a doctor that specializes in MS and set an appointment for me.

My mother arrived around 4 am, she was exhausted, and they drove from Virginia nonstop.  I felt a bit better but I was nowhere near my total self.  My left leg was just simply dead weight, I had my cane to assist with walking but the real challenge was trying to get up off the sofa.  My therapist had recommended that I move my bedroom to the first floor for fear I would fall down the steps.  It was really a good thing my sofa had a chaise connected to it.  This was my new bed.  I only ventured upstairs when it was time to take a shower. My mother had brought her airbed with her and she joined me in the living room.

Finally, it was time to go for my doctor’s appointment and meet my new doctor.  In the back of my mind I really wished I could have had Dr. John Harney as my physician he seemed to be the only doctor that really took the time to listen and explain what was happening to my body.  To no avail I was off to my appointment.

The inevitable occurred, when I exited the car I could not walk.  I was so embarrassed; I did not want my mother to see me like this.  I know I had no control over what my body was doing, but for some reason I was embarrassed, tears began to flow I had no control over them.  My son hugged me and said “mom it’s okay I will go inside to see if they have a wheelchair somewhere.  I am a determined woman.  I decided I was going to walk in; with my mother by my side after 15 minutes, I made it into the building and to the doctor’s office.

The new doctor was a young black female that looked like she had just graduated college.  My family joined me in the examining room; and we discussed everything I had been through.  She wanted to take some time to review all of my medical records I a brought to her, including my MRI’s and CAT scans.  She returned to the examining room and said she wanted to start scheduling me for tests.  After inquiring as to what tests I would have to take, I started to become discouraged; she wanted me to repeat all of the tests I had already went through with a couple new ones.  My first thought was regarding my health insurance, I know they were probably wondering why I was going to repeat the same tests for the third time.  I consented, because at this point I really did not have much of a choice.

The worst test I had to endure I do not even recall what it was; but I do know it was extremely painful.  I had to lay on a table and the technician inserted long thin needles in the muscles of my legs and attached wires and then sent electricity through them into my muscles.  When the testing was done, I was in so much pain but had to return to work.  The things one has to go through all in the name of medical science.

My mother eventually returned home, and I continued my physical therapy three times a week. My time was spent going to the doctor’s office, going for the various tests she ordered to have done and physical therapy.  My body began to get stronger, my short term memory was getting better and my job was pressing me on when I was going to return to work.  I knew I had to return soon, amongst everything else I was going through I had to battle with my insurance company regarding my short term disability.  They stopped it altogether because one of the many doctors that had treated me during my stay in the Rehab hospital failed to respond to one of their request.  My back was against the wall, no money; pressured me into going back to work before the recommended time by my doctors.  I conceited and returned to work and prayed that God would give me the strength to do handle everything that was before me.  I stopped the therapy, I had finished all of the tests the Neurologist ordered and I returned to work to a huge mess.