My Journey My Challenge – Multiple Sclerosis Journal IX

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by Jewel Tyler

Before leaving the Rehab Hospital, the case worker that was assigned to me located a doctor that specializes in MS and set an appointment for me.

My mother arrived around 4 am, she was exhausted, and they drove from Virginia nonstop.  I felt a bit better but I was nowhere near my total self.  My left leg was just simply dead weight, I had my cane to assist with walking but the real challenge was trying to get up off the sofa.  My therapist had recommended that I move my bedroom to the first floor for fear I would fall down the steps.  It was really a good thing my sofa had a chaise connected to it.  This was my new bed.  I only ventured upstairs when it was time to take a shower. My mother had brought her airbed with her and she joined me in the living room.

Finally, it was time to go for my doctor’s appointment and meet my new doctor.  In the back of my mind I really wished I could have had Dr. John Harney as my physician he seemed to be the only doctor that really took the time to listen and explain what was happening to my body.  To no avail I was off to my appointment.

The inevitable occurred, when I exited the car I could not walk.  I was so embarrassed; I did not want my mother to see me like this.  I know I had no control over what my body was doing, but for some reason I was embarrassed, tears began to flow I had no control over them.  My son hugged me and said “mom it’s okay I will go inside to see if they have a wheelchair somewhere.  I am a determined woman.  I decided I was going to walk in; with my mother by my side after 15 minutes, I made it into the building and to the doctor’s office.

The new doctor was a young black female that looked like she had just graduated college.  My family joined me in the examining room; and we discussed everything I had been through.  She wanted to take some time to review all of my medical records I a brought to her, including my MRI’s and CAT scans.  She returned to the examining room and said she wanted to start scheduling me for tests.  After inquiring as to what tests I would have to take, I started to become discouraged; she wanted me to repeat all of the tests I had already went through with a couple new ones.  My first thought was regarding my health insurance, I know they were probably wondering why I was going to repeat the same tests for the third time.  I consented, because at this point I really did not have much of a choice.

The worst test I had to endure I do not even recall what it was; but I do know it was extremely painful.  I had to lay on a table and the technician inserted long thin needles in the muscles of my legs and attached wires and then sent electricity through them into my muscles.  When the testing was done, I was in so much pain but had to return to work.  The things one has to go through all in the name of medical science.

My mother eventually returned home, and I continued my physical therapy three times a week. My time was spent going to the doctor’s office, going for the various tests she ordered to have done and physical therapy.  My body began to get stronger, my short term memory was getting better and my job was pressing me on when I was going to return to work.  I knew I had to return soon, amongst everything else I was going through I had to battle with my insurance company regarding my short term disability.  They stopped it altogether because one of the many doctors that had treated me during my stay in the Rehab hospital failed to respond to one of their request.  My back was against the wall, no money; pressured me into going back to work before the recommended time by my doctors.  I conceited and returned to work and prayed that God would give me the strength to do handle everything that was before me.  I stopped the therapy, I had finished all of the tests the Neurologist ordered and I returned to work to a huge mess.

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